Early 2013
Sutent stopped working on my maintenance dose of 37.5 mgs 21 days on and 7 off that had given me many years, of life. When Dr. Burgos gave me the news, my heart stopped for a second and I thought my luck has run out? Then words came out of my mouth automatically, what if we try putting me back on the 50 mgs, like I did the first year and see if I can be NED again? She agreed! We went from CT scans from every four months back to every 90 days. Once again "I was living 90 days at a time" like lyrics in a bad country song.
I was alone now, Mark had died 12/11/11, I was living in the house I was born with my sister the current owner. I had good friends, but I was not truly happy, I now had hope taken away. I was determined I was going to be the next patient on the screen at a KCA conference for how long I stayed on Sutent!
My side effects were more debilitating the side effects were worse the blisters on the bottom of my right foot unbearable having to bandage my feet daily. I had a wonderful manicurist and friend name Kimberly, during these years along with her sisters, Tran and Lil Kim who gently would care for my feet once a month with tender loving pedicures making sure they were careful my toes did not become ingrown or infected.
to be continued.....
Sutent stopped working on my maintenance dose of 37.5 mgs 21 days on and 7 off that had given me many years, of life. When Dr. Burgos gave me the news, my heart stopped for a second and I thought my luck has run out? Then words came out of my mouth automatically, what if we try putting me back on the 50 mgs, like I did the first year and see if I can be NED again? She agreed! We went from CT scans from every four months back to every 90 days. Once again "I was living 90 days at a time" like lyrics in a bad country song.
I was alone now, Mark had died 12/11/11, I was living in the house I was born with my sister the current owner. I had good friends, but I was not truly happy, I now had hope taken away. I was determined I was going to be the next patient on the screen at a KCA conference for how long I stayed on Sutent!
My side effects were more debilitating the side effects were worse the blisters on the bottom of my right foot unbearable having to bandage my feet daily. I had a wonderful manicurist and friend name Kimberly, during these years along with her sisters, Tran and Lil Kim who gently would care for my feet once a month with tender loving pedicures making sure they were careful my toes did not become ingrown or infected.
to be continued.....
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